wrjc1hod 发表于 2024-6-28 08:55:16

自闭症作家东田直树:我不会画画不会说话,然则我写了一本书


    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="//q7.itc.cn/images01/20240411/09dadda95ade4bc589e26b6fa1530435.gif" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">为何</span>你总是要<span style="color: black;">忽然</span>跑开呢?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">为何</span>你会<span style="color: black;">持续</span>地重复某个动作?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">为何</span>你总是动来动去?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">你<span style="color: black;">为何</span>会一遍一遍问相同的问题呢?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">你<span style="color: black;">为何</span><span style="color: black;">不可</span>正常对话?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">为何</span>你不跟别人进行眼神交流?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">你更<span style="color: black;">爱好</span>一个人待着吗?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">为何</span>你经常会捂住耳朵?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在与自闭症人士的接触过程中</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">倘若</span>你经常存在疑问</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">那说明你还不<span style="color: black;">认识</span>这个群体</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">“在前往<span style="color: black;">咱们</span>世界的路上,</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">祝你一路顺风。”</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"> ——东田直树,2006年于日本</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="//q2.itc.cn/images01/20240411/b292c1bac007491baf5bf750a9e7abce.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">东田直树,日本著名重度自闭症<span style="color: black;">病人</span>兼作家。从严格<span style="color: black;">道理</span>上讲,他并不会说话。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">13岁那年,东田用纸板做的字母表,一字一句地指给代笔者看,<span style="color: black;">没</span>比艰难地完<span style="color: black;">成为了</span>《我想飞进天空》。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="//q0.itc.cn/images01/20240411/26578f33f2444eb781a0a4472c172a82.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">书中列出了58个<span style="color: black;">相关</span>自闭儿的疑问,以自问自答的方式,把自己遇到的<span style="color: black;">困难</span>一一说明。<span style="color: black;">针对</span>自己,他曾倾诉:<strong style="color: blue;">“其实,自闭症<span style="color: black;">病人</span>有很大的<span style="color: black;">心情</span>空间,要表达的事情<span style="color: black;">非常多</span><span style="color: black;">非常多</span>。我的志愿是<span style="color: black;">作为</span>一个作家,<span style="color: black;">便是</span>要让世人<span style="color: black;">认识</span>到一个自闭症<span style="color: black;">病人</span>的内心世界是多么丰富。”</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">“对<span style="color: black;">咱们</span>而言,最大的<span style="color: black;">熬煎</span><span style="color: black;">便是</span>看到自己为别人带来了这么多的痛苦。<span style="color: black;">咱们</span>难以忍受自己的存在<span style="color: black;">成为了</span>别人的<span style="color: black;">包袱</span>……<span style="color: black;">哪些</span>整天跟<span style="color: black;">咱们</span>待在<span style="color: black;">一块</span>的人,请不要<span style="color: black;">由于</span>我而感到压力。”</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">——东田直树</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">以下是直树在书中写到的问题与答案:</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">01</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">你是<span style="color: black;">怎样</span>写下这些<span style="color: black;">文案</span>的?</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">这真是一种难以置信的感觉,<strong style="color: blue;"><span style="color: black;">没</span>法说话就<span style="color: black;">寓意</span>着你<span style="color: black;">没</span>法分享你的情感和思想。</strong>于是<span style="color: black;">无</span>梦想,<span style="color: black;">无</span><span style="color: black;">期盼</span>,就像是一个孤独的玩偶了此残生。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我花了很长的时间去练习<span style="color: black;">把握</span>。当母亲手把手教我用“写”的方式的<span style="color: black;">第1</span>天<span style="color: black;">起始</span>,我就<span style="color: black;">得到</span>一种新的和别人互动的方式。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">支撑我<span style="color: black;">保持</span>下去的信念<span style="color: black;">便是</span><strong style="color: blue;"><span style="color: black;">必定</span>要像一个人那样活下去,而做到这一点,<span style="color: black;">无</span>什么比能够表达自己更<span style="color: black;">要紧</span>了。</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">02</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">为何</span>说话这么大声和古怪?</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">这确实是我<span style="color: black;">没</span>法<span style="color: black;">掌控</span>的事情之一,真是让人<span style="color: black;">懊丧</span>。当我用古怪的语调说话时,这<span style="color: black;">并不</span>是<span style="color: black;">根据</span>我的意愿的。这种脱口而出,不是<span style="color: black;">由于</span>我想<span style="color: black;">这般</span>,而是这就像是一种<span style="color: black;">要求</span>反射。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我<span style="color: black;">此刻</span><span style="color: black;">已然</span>能成功地<span style="color: black;">掌控</span>自己的古怪声音了,但我明白这问题还<span style="color: black;">困惑</span>着别人(跟我<span style="color: black;">同样</span>的自闭症<span style="color: black;">病人</span>)。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">难道这种发自<span style="color: black;">咱们</span>嘴巴的声音要阴魂不散跟随<span style="color: black;">咱们</span><span style="color: black;">始终</span>到死么?老实说,我<span style="color: black;">亦</span>想好好地,冷静下来安静下来。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">03</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">为何</span>一遍遍问同一个问题?</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">针对</span><span style="color: black;">哪些</span>我不重复问的问题,其实是<span style="color: black;">由于</span>我<span style="color: black;">不睬</span>解。反言之,我重复问的问题都是我理解的问题。</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">那样</span><span style="color: black;">原由</span><span style="color: black;">安在</span>呢(重复问问题)?<strong style="color: blue;">那是<span style="color: black;">由于</span>我<span style="color: black;">火速</span>就忘记我所听到的了。</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">假设一个平<span style="color: black;">一般人</span>的记忆都是连续的,就像一条线<span style="color: black;">同样</span>。<strong style="color: blue;">而我的记忆,就像是聚着一大堆点的池子。</strong>而我总是想要把这些“点”找出来——<span style="color: black;">经过</span>问问题的方式——<span style="color: black;">而后</span>把这些“点”又放回记忆的“池子“里。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">04</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">为何</span>告诫了你一百万次不要<span style="color: black;">那样</span>做而你还是<span style="color: black;">那样</span>做呢?</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">老实说,事情不是<span style="color: black;">这般</span>的。当<span style="color: black;">咱们</span>又一次做了你们不被<span style="color: black;">准许</span>的事情时,这让<span style="color: black;">咱们</span>感到恐惧。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">可是,当(做那件事情的机会)又来临时,<span style="color: black;">咱们</span>又忍不住去做了完全忘却了上次的告诫,就像是有什么驱使<span style="color: black;">同样</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">咱们</span><span style="color: black;">亦</span>清楚这让你们难过和<span style="color: black;">懊丧</span>,但这个看来我从来对此<span style="color: black;">没</span>话可说,恐怕,只能<span style="color: black;">这般</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">然则</span>,<span style="color: black;">没</span>论<span style="color: black;">怎样</span>,不管你怎么做,请不要放弃<span style="color: black;">咱们</span>,<span style="color: black;">咱们</span><span style="color: black;">必须</span>你的帮助。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">05</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">为何</span>回答问题就像回音<span style="color: black;">同样</span>?</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">自闭症人常常在回答问题的时候,就像个鹦鹉<span style="color: black;">通常</span>,<span style="color: black;">她们</span><span style="color: black;">无</span>回答问题,而是将问题又复述一遍直接抛回给提问者。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">其实<span style="color: black;">咱们</span>是借助这种(鹦鹉学舌的)方式将提问者的问题从自己的记忆中筛选出来找到<span style="color: black;">关联</span>线索。当<span style="color: black;">咱们</span>理解了问题,但<span style="color: black;">咱们</span>却<span style="color: black;">没</span>法回答问题,除非<span style="color: black;">咱们</span>从脑海中找到了对应的正确“记忆图景”。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我发誓对话是一个艰巨的工作!<strong style="color: blue;">为了让我为人所理解,我就像是在每分每秒都讲述着一种连我自己都不懂的外国语。</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在书中,直树不止一次的表达出<span style="color: black;">针对</span>尊重、<span style="color: black;">陪同</span>和理解的<span style="color: black;">巴望</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">“<span style="color: black;">咱们</span>这些自闭儿<span style="color: black;">期盼</span>你们能<span style="color: black;">始终</span>留意<span style="color: black;">咱们</span>,意思<span style="color: black;">便是</span>‘请永远不要放弃<span style="color: black;">咱们</span>。’</strong>我用了‘留意’这个词,是<span style="color: black;">由于</span>你们仅仅是在一旁看着<span style="color: black;">咱们</span>,就能让<span style="color: black;">咱们</span>更加坚强。当<span style="color: black;">咱们</span>感觉到你们<span style="color: black;">已然</span>放弃<span style="color: black;">咱们</span>的时候,<span style="color: black;">咱们</span>的内心就会<span style="color: black;">非常</span>痛苦。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="//q9.itc.cn/images01/20240411/fb636436b70e410495344ae80e11d020.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">“我请求你们,<span style="color: black;">哪些</span>整天跟<span style="color: black;">咱们</span>待在<span style="color: black;">一块</span>的人,不要<span style="color: black;">由于</span><span style="color: black;">咱们</span>而感到有压力。当你们有压力的时候,<span style="color: black;">咱们</span>会觉得你们在否定<span style="color: black;">咱们</span>人生中可能的所有价值——而这<span style="color: black;">亦</span>掐断了<span style="color: black;">咱们</span>继续迎难而上的念头。对<span style="color: black;">咱们</span>而言,最大的<span style="color: black;">熬煎</span><span style="color: black;">便是</span>看到自己为别人带来了这么多的痛苦。<span style="color: black;">咱们</span><span style="color: black;">能够</span>很好的应对<span style="color: black;">自己</span>的困难,<span style="color: black;">然则</span><span style="color: black;">咱们</span>难以忍受自己的存在<span style="color: black;">成为了</span>别人的<span style="color: black;">包袱</span>。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">“每当看到家人在平凡的<span style="color: black;">平常</span>中露出幸福的笑容,我就会感到很幸福。</strong>我想对各位父母说,请不要在<span style="color: black;">孩儿</span>面前哭泣,<span style="color: black;">孩儿</span>们最<span style="color: black;">巴望</span>的是,接纳自己的<span style="color: black;">地区</span>和爸爸妈妈的笑容。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="//q1.itc.cn/images01/20240411/da4d990791994690ab1b0ace4c42a345.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在很长一段时间里,直树都在问自己,“<span style="color: black;">为何</span><span style="color: black;">不可</span>说话的我要降临在这个世界上?”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">“在我<span style="color: black;">懊丧</span>、痛苦、<span style="color: black;">没</span>助的日子里,我<span style="color: black;">乃至</span>幻想要是所有人都<span style="color: black;">身患</span>自闭症,将会是<span style="color: black;">怎么样</span>的一番场景。<strong style="color: blue;"><span style="color: black;">倘若</span>自闭症仅仅被当成一种性格特征的话,生活对<span style="color: black;">咱们</span><span style="color: black;">来讲</span>就会容易<span style="color: black;">非常多</span>,快乐<span style="color: black;">非常多</span>。”</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">以前他觉得,<span style="color: black;">倘若</span><span style="color: black;">能够</span>变成正<span style="color: black;">一般人</span>,将是上天最大的恩赐。<span style="color: black;">然则</span><span style="color: black;">此刻</span>,他却认识到:</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">“<span style="color: black;">每一个</span>人类个体,<span style="color: black;">没</span>论有<span style="color: black;">无</span>缺陷,都<span style="color: black;">必须</span><span style="color: black;">奋斗</span>拼搏。<span style="color: black;">况且</span><span style="color: black;">仅有</span>在为幸福奋斗的过程中,你才会找到幸福。只要<span style="color: black;">咱们</span>学着去爱<span style="color: black;">咱们</span>自己,<span style="color: black;">没</span>论是正常还是<span style="color: black;">身患</span>自闭症,在我看来都<span style="color: black;">没</span>关紧要了。”</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">——东田直树</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">她们</span>,只是和<span style="color: black;">咱们</span>不<span style="color: black;">同样</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">而<span style="color: black;">她们</span><span style="color: black;">尤其</span>愿意看到的<span style="color: black;">便是</span>父母<span style="color: black;">伴侣</span>对自己的接纳、理解和<span style="color: black;">陪同</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">这<span style="color: black;">便是</span>直树的故事</strong><a style="color: black;"><span style="color: black;">返回<span style="color: black;">外链论坛:http://www.fok120.com/</span>,查看<span style="color: black;">更加多</span></span></a></p>

    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">责任编辑:网友投稿</span></p>




听听海 发表于 2024-9-9 21:38:35

“沙发”(SF,第一个回帖的人)‌

m5k1umn 发表于 2024-10-2 13:41:33

你的话语真是温暖如春,让我心生感激。
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查看完整版本: 自闭症作家东田直树:我不会画画不会说话,然则我写了一本书