B站上病患癌症的UP主,记录下的不止是私人记忆。
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_gif/yZPTcMGWibvsDBq8Wdjr1qGlY0o2qST6lIKStr6TW5WeUiaFDWicYaS3PjPL3iapI7g3KI4YlRicMnpAB42h3ibfceUw/640?wx_fmt=gif&tp=webp&wxfrom=5&wx_lazy=1" style="width: 50%; margin-bottom: 20px;"></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><span style="color: black;">差评君平时很爱逛 B 站,里面的鬼畜视频、</span>弹幕文化、自由而富于想象的二次元内容,让人欲罢<span style="color: black;">不可</span>。</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">但前几天差评君刷 B 站的时候,看到了一个 “ 当我<span style="color: black;">晓得</span>自己是肺癌晚期的时候,我在想什么之<span style="color: black;">忽然</span>夜聊 ” 的</span><span style="color: black;">视频,一下子把我拉回了现实。</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">看完还挺<strong style="color: blue;">难受</strong>的。</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">UP 主的名字叫 “ 卡夫卡松饼君 ”,是个<span style="color: black;">青年</span>的<span style="color: black;">女子</span>儿,视频里的她,眼神透出怅然和疲倦,声音很轻。</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_gif/4uKhyokvDgu0TkojXPNicB2MqCePwryJnuOiauq5ejxofhyhZzS2mJMs0VxqbfHqWUOUg0vXX6nib8KiapcvuJrQTg/640?wx_fmt=gif&tp=webp&wxfrom=5&wx_lazy=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">“ <span style="color: black;">此刻</span><span style="color: black;">已然</span>是波士顿的<span style="color: black;">夜晚</span>了,<span style="color: black;">而后</span>我<span style="color: black;">便是</span><span style="color: black;">忽然</span>想跟<span style="color: black;">大众</span>聊聊天。我想<span style="color: black;">忽然</span>跟<span style="color: black;">大众</span>聊天的主题是,</span><span style="color: black;">( 停顿 )</span><span style="color: black;">” 她自顾自笑笑,“ <span style="color: black;">大众</span>不要笑我,我<span style="color: black;">近期</span>觉得<span style="color: black;">便是</span>自己认认真真在长胖,我从<span style="color: black;">第1</span>次化疗后,体重掉到了 51,<span style="color: black;">而后</span>我<span style="color: black;">此刻</span>体重回到了大概 58、将近 59 。。。”</span><span style="color: black;"><span style="color: black;">倘若</span>不是<span style="color: black;">由于</span>标题,她看上去<span style="color: black;">便是</span><strong style="color: blue;"><span style="color: black;">咱们</span>身边的普通人</strong>,会在 B 站和<span style="color: black;">博客</span>上传<span style="color: black;">平常</span>生活中平凡简单的片段。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_gif/4uKhyokvDgu0TkojXPNicB2MqCePwryJn6Eq5lStT4DsNtnOibyg6TuBSm8PZHUsIYfNSycOy9weAcVMD6fU4k4A/640?wx_fmt=gif&tp=webp&wxfrom=5&wx_lazy=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">但<span style="color: black;">实质</span>上,她在经历的是<strong style="color: blue;"><span style="color: black;">非常多</span>人不曾经历的<span style="color: black;">疾患</span></strong>,除了生理病变,心理和精神上,从得到确诊的那天起,她便<span style="color: black;">起始</span>面对自己将在几年<span style="color: black;">乃至</span>几个月内死去的可能。</span><span style="color: black;"><span style="color: black;">亦</span>许<span style="color: black;">由于</span>她的身份,她的视频在 B 站得到了许多关注,还<span style="color: black;">因此呢</span>进了全站日榜。</span><span style="color: black;">在 B 站上搜索,差评君看到了<span style="color: black;">非常多</span>其他<strong style="color: blue;"><span style="color: black;">病患</span>癌症的 UP 主</strong>,<span style="color: black;">她们</span>和松饼君<span style="color: black;">同样</span>,拍视频记录、分享自己的生活、治疗过程。</span><span style="color: black;">在这个网络社区,<span style="color: black;">她们</span>被接纳,<span style="color: black;">能够</span>不受限地<strong style="color: blue;">讨论<span style="color: black;">疾患</span>本身、诉说内心</strong>。</span><span style="color: black;">2019 年的春天,在南佛罗里达大学完成本科学业的松饼君,被波士顿大学录取,8 月底被确诊为肺癌晚期,癌细胞扩散到了肝脏和骨骼。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_gif/4uKhyokvDgu0TkojXPNicB2MqCePwryJn6Z6r5XXWng1rpcgc1pVc6sjwviaR4awXgce1WUeHvLah3tBFhjvEghA/640?wx_fmt=gif&tp=webp&wxfrom=5&wx_lazy=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">护士抱着她痛哭,她<span style="color: black;">亦</span>哭出来。</span><span style="color: black;">她觉得自己是幸运的,<span style="color: black;">由于</span><span style="color: black;">大夫</span>告诉她,<span style="color: black;">倘若</span>当时没<span style="color: black;">发掘</span>癌症的话<strong style="color: blue;">她可能会在 5 到 6 个月内去世。</strong></span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">之后的半年,她在波士顿的一家癌症<span style="color: black;">科研</span>院接受<span style="color: black;">定时</span>化疗。</span><span style="color: black;"><span style="color: black;">同期</span><span style="color: black;">起始</span>在<span style="color: black;">博客</span>和 B 站上传 “ 当我<span style="color: black;">晓得</span>自己是肺癌晚期的时候,我在想什么 ” 的系列视频。</span><span style="color: black;">她说,她想要她的<span style="color: black;">伴侣</span>在 “<strong style="color: blue;">能看到我的<span style="color: black;">状况</span>下</strong>,<span style="color: black;">晓得</span>我的<span style="color: black;">信息</span> ” 。</span><span style="color: black;">松饼君的视频里,会<span style="color: black;">显现</span>朝镜头拘谨介绍自己的主治<span style="color: black;">大夫</span>。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">还有她和护士交流抽血、化疗的场景。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">她<span style="color: black;">亦</span>会回答<span style="color: black;">大众</span>关于癌症、化疗的问题:什么时候<span style="color: black;">发掘</span>的、怎么<span style="color: black;">发掘</span>的。做化疗和免疫治疗会不会很疼和脱发。</span><span style="color: black;">她在视频里唱歌、聊爱看的综艺、<span style="color: black;">亦</span>聊对爱情的憧憬和自己的不自信。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">治疗期间,<span style="color: black;">大夫</span>告诉她,肿瘤在缩小,治疗在朝向一个积极的方向。</span><span style="color: black;">但她<span style="color: black;">晓得</span>凡事有万一,况且 <strong style="color: blue;">“ 到了这个程度 ”</strong>。</span><span style="color: black;"><span style="color: black;">因此呢</span>她不<span style="color: black;">期盼</span>爸妈倾注一切在她的治疗上,“ <span style="color: black;">倘若</span>有一天我不在这个世界上了,我不<span style="color: black;">期盼</span>我的父母是<strong style="color: blue;">老<span style="color: black;">没</span>所养</strong>的。”</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">比松饼君大 12 岁的 UP 主 “ 虎子的后半生 ” 4 年多前被确诊为肺癌晚期,<span style="color: black;">由于</span>肺的<span style="color: black;">损害</span>,他失去了劳动能力。</span><span style="color: black;">他<span style="color: black;">起始</span>拍视频上传到自<span style="color: black;">媒介</span>上,<strong style="color: blue;">为了留下<span style="color: black;">有些</span>回忆</strong>,<span style="color: black;">亦</span>期望得到<span style="color: black;">有些</span>收入<span style="color: black;">做为</span>治疗<span style="color: black;">花费</span>。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/4uKhyokvDgu0TkojXPNicB2MqCePwryJnQyuKR67FSlQyx2pLcWp8kNicthqy2bsichCTInsia7GeVrhia8EZauCtpg/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;"></span></p><span style="color: black;">去年 12 月,他在 B 站上传了<span style="color: black;">第1</span>个视频,</span><span style="color: black;"><span style="color: black;">由于</span>妈妈中风住院他忍不住大哭。</span><span style="color: black;">他在视频中哭诉,他的爸爸患了糖尿病、冠心病,妈妈中风之前还惦记多种玉米、生姜卖钱,为自己治病。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">身体<span style="color: black;">情况</span>好<span style="color: black;">有些</span>的时候他教儿子<span style="color: black;">怎么样</span>坐公交。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">但又<span style="color: black;">保持</span>骑电动车送儿子上学,<span style="color: black;">由于</span><span style="color: black;">能够</span>有<span style="color: black;">更加多</span>陪在他身边亲密的机会。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><span style="color: black;">1星期</span>多前,<span style="color: black;">由于</span><span style="color: black;">情况</span>恶化,虎子连着几天<span style="color: black;">无</span>再拍视频。他后<span style="color: black;">来讲</span>,那几天得到<span style="color: black;">信息</span>,<span style="color: black;">此刻</span>的<span style="color: black;">实验</span>治疗<span style="color: black;">方法</span>,因<strong style="color: blue;"><span style="color: black;">没</span>法遏止他身上的癌症恶化</strong>或许将中止。</span><span style="color: black;">他<span style="color: black;">近期</span>一次上传视频是两天前,他<span style="color: black;">已然</span><span style="color: black;">没</span>法站立行走,不得不坐在轮椅上,由爱人推着去医院做<span style="color: black;">检测</span>,<span style="color: black;">大夫</span>告诉他 “<strong style="color: blue;">结果不太好</strong> ”。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><span style="color: black;">状况</span>类似的,还有一个叫 “ 抗白六代目 ” 的 UP 主,<span style="color: black;">由于</span>白血病前前后后经历了 7 次化疗。</span><span style="color: black;">他是内地一支乐队的乐手,在他上传到 B 站的视频里,都是他自己或是和<span style="color: black;">伴侣</span>、爸爸玩音乐的样子。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"></span></p><span style="color: black;">时尚区 UP 主 “ 叮咚betty ”,两年多前被诊断为恶性淋巴瘤晚期,前后经历 8 次化疗、15 次放疗后<span style="color: black;">恢复</span>。今年 2 月,她<span style="color: black;">第1</span>次在视频里谈及她的治疗过程以及<span style="color: black;">恢复</span>后的<span style="color: black;">副作用</span>。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">新人 UP 主 “ 一只罗宝啊 ” 14 岁<span style="color: black;">病患</span>白血病,她拍视频科普<span style="color: black;">没</span>菌仓、白血病知识,记录自己服药、复查和<span style="color: black;">平常</span>生活。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"></span></p><span style="color: black;">差评君觉得,在 B 站拍视频的这些癌症病人,<strong style="color: blue;">并</strong><strong style="color: blue;">不是为了放大自己身体的<span style="color: black;">病痛</span>和内心的<span style="color: black;">哀痛</span>,<span style="color: black;">而后</span><span style="color: black;">因此呢</span>得到施舍和怜悯。</strong></span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_png/yZPTcMGWibvuAgjoHhAb3ibzp37yibuiaWiaOEYWmwPy2KkEFambicbozaPMaMxhECPCyTVU9rl5QxibkVqUcZMzmRicJQ/640?wx_fmt=png&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><span style="color: black;">非常多</span>时候,<span style="color: black;">她们</span>只是用最简单、平凡的方式确认自己在这个世界的存在,以及生命的事实和<span style="color: black;">道理</span>。</span><span style="color: black;"><span style="color: black;">她们</span>阅读、回复评论和私信,交流、共享知识、见解、快乐、孤独。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><span style="color: black;">她们</span>会被满屏 “ 加油 ” 的弹幕默契鼓舞,觉得弹幕<span style="color: black;">亦</span>是种<strong style="color: blue;">认同、<span style="color: black;">陪同</span></strong>。</span><span style="color: black;">而差评君<span style="color: black;">亦</span>觉得,B 站上的<span style="color: black;">青年</span>人<span style="color: black;">亦</span><span style="color: black;">由于</span>这些 UP 主的存在,补上了<strong style="color: blue;">生死教育</strong>,形<span style="color: black;">成为了</span>自己的生死观。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">BBC 拍过一部小众的纪录片,叫《 我死前的最后一个夏天 》</span><span style="color: black;">( My Last Summer )</span><span style="color: black;">,记录了 5 个被诊断为绝症、生命行将在一年内结束的病人的 4 个周末。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">这 5 个人被聚在<span style="color: black;">一块</span>,跟彼此以及家人和<span style="color: black;">伴侣</span>,<strong style="color: blue;">交流痛苦、死亡、宗教,分享自己关于葬礼、遗产、来世的想法。</strong></span><span style="color: black;">纪录片中的专家说,<span style="color: black;">她们</span>经常看到被诊断为绝症的人被社会<strong style="color: blue;">边缘化</strong>,被<span style="color: black;">伴侣</span>和家庭<strong style="color: blue;">孤立</strong>,<span style="color: black;">倘若</span>人人都不去讨论死亡,<span style="color: black;">哪些</span>绝症<span style="color: black;">病人</span>只会越来越害怕。</span><span style="color: black;">有许多<span style="color: black;">病患</span>癌症的人会在 B 站上这些视频的评论区倾诉自己的病症、想法或情感,<span style="color: black;">由于</span>在现实中说出这些,可能会被认为矫情。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">即使在</span><span style="color: black;">这些 </span><span style="color: black;">B 站</span><span style="color: black;">UP 主的视频弹幕中<span style="color: black;">亦</span>会有扎眼的嘲讽和恶毒的攻击。</span><span style="color: black;">但差评君依然觉得<span style="color: black;">幸运</span>,<span style="color: black;">没</span>论 B 站,还是知乎、论坛、公众号,为这些癌症病人形<span style="color: black;">成为了</span>一个<strong style="color: blue;"><span style="color: black;">安顿</span><span style="color: black;">心情</span>、表达想法</strong>的<span style="color: black;">包涵</span>的场域。</span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">所有人<span style="color: black;">能够</span>在<span style="color: black;">这儿</span><strong style="color: blue;">自由谈论<span style="color: black;">疾患</span>、死亡,谈论<span style="color: black;">期盼</span>、失望,谈论放弃、坚</strong><strong style="color: blue;">持。</strong></span>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></span></p><span style="color: black;"><span style="color: black;">病患</span>癌症的人以<span style="color: black;">这般</span>真切的记录方式,在互联网上留下了这些私人记忆。</span><span style="color: black;">而对<span style="color: black;">更加多</span>人<span style="color: black;">来讲</span>,<span style="color: black;">她们</span>从这些满是生命力的生活记录中,认识、接近了<span style="color: black;">疾患</span>、死亡这些严肃、还有点沉重的命题。</span><span style="color: black;">所有人<span style="color: black;">因此呢</span><strong style="color: blue;">理解<span style="color: black;">更加多</span>东西,理解生活,理解人的<span style="color: black;">一辈子</span>中超越朴素<span style="color: black;">平常</span>的<span style="color: black;">道理</span></strong>。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;">
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