7wu1wm0 发表于 2024-6-27 11:24:17

25岁女留学生肺癌晚期去世,生前视频揭发:杀死她的不仅是癌细胞


    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><strong style="color: blue;"><span style="color: black;"><strong style="color: blue;"><span style="color: black;">↓↓↓点击下方卡片,<span style="color: black;">发掘</span><span style="color: black;">更加多</span>精彩↓↓↓</span></strong></span></strong></span></p><img src="https://mmbiz.qpic.cn/mmbiz_gif/IXAO33kD7zblnicXEk9lG7xudmibu4ZnQ8kLOfenicic7iaUlT7vh3iazJ8F1KM6JGPRLsibIT2UVc0ib7cwjoOdB3ogicA/640?wx_fmt=gif&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1" style="width: 50%; margin-bottom: 20px;"><img src="https://mmbiz.qpic.cn/mmbiz_png/IXAO33kD7zblnicXEk9lG7xudmibu4ZnQ8aCYQHyaic5u6sI027MWsWjBUuiagHGwIdicJrkOrBDHcQzj7o297WKayw/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;">
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><strong style="color: blue;">英语口</strong><span style="color: black;"><strong style="color: blue;">语</strong><strong style="color: blue;"><span style="color: black;">·</span></strong><strong style="color: blue;">吉</strong></span><strong style="color: blue;">米老师说&nbsp;</strong></span></p><span style="color: black;">咱们</span>既存在于同一个世界,<span style="color: black;">亦</span>生活在<span style="color: black;">区别</span>的世界,请不要用固有认知去扼杀别人世界存在的可能性。<img src="https://mmbiz.qpic.cn/mmbiz_png/UYpGYFibt1lN9VArib6yPIczXKiatL0x25szmsPwpGEHB2WmC8VTYdokDwvLCfnkhkIL4clTicgUFCS9awU07PQicXg/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">名人</span>·不完美<span style="color: black;">病人</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">作者 | 桑桑姐;公号<span style="color: black;">&nbsp;|&nbsp;</span>腰线(yaoxian6)</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/iaUvG0Iiavkf9uicR7PdFZvSbckYGxZibyyTbbGwnC7c0TCX2m94NZnqiat5j6ZcpQF3Bqyg4xHHxMPfLgkeaRia2ANw/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><strong style="color: blue;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/iaUvG0IiavkfibLZtmIPYrHdtZWtLv9R4ZlWFxvpqbtWqjiaQxpYW0PT2yw8fpib4jz05eSiaejCu52uYDdrDaMTiaib8A/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></strong></span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">哪些</span><span style="color: black;">已然</span><span style="color: black;">逝去</span>的UP主</strong></span><strong style="color: blue;">Those uploader who have passed away</strong><span style="color: black;">我害怕完美。</span><span style="color: black;">如今完美只是一个调侃的词汇,像金星那样,双手食指朝天一指,“完美”二字轻而易举地吐出来。</span><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0IiavkficRibahMPm4PiaajNaTAqA6ER7u1sD56lyEzOlGAaUpvOb9gFXHFwRY9uYqKWpuQH85ycqViaw2VKUibA/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><strong style="color: blue;"><span style="color: black;">近两年的热搜,仿佛一场大型社科实验,人们<span style="color: black;">最终</span><span style="color: black;">起始</span><span style="color: black;">认识</span>,拿着放大镜去观测每一个人类,都不可能完美。</span></strong><span style="color: black;"><span style="color: black;">哪些</span>被性侵的<span style="color: black;">女子</span>们,用血泪教<span style="color: black;">公众</span><span style="color: black;">晓得</span>了“不完美受害者”这个词;</span><span style="color: black;">杂交水稻之父袁隆平,让<span style="color: black;">咱们</span>学会了“不完美英雄”的概念;</span><span style="color: black;"><span style="color: black;">由于</span>新冠的轨迹调查,普通人的生活<span style="color: black;">成为了</span><span style="color: black;">资讯</span>,<span style="color: black;">咱们</span>又看到了一个个“不完美<span style="color: black;">病人</span>”。</span><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0IiavkficRibahMPm4PiaajNaTAqA6ERZD9z2eFfjqlia3GfghwRZPsibYNol9xRC8E2IKptHyW9OuuSAxayzRJg/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><strong style="color: blue;"><span style="color: black;">‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍‍</span></strong></span><span style="color: black;">前些天, B站<span style="color: black;">由于</span>将<span style="color: black;">逝去</span>用户账号列为纪念账号上热搜了,获赞数十万。</span><span style="color: black;">2020年12月11日,<span style="color: black;">病患</span>癌症的up主“卡夫卡松饼君”,在波士顿治疗<span style="color: black;">没</span>效去世了,<span style="color: black;">美丽</span>的她,才25岁。</span><span style="color: black;">2020年10月6日,up主“虎子的后半生”<span style="color: black;">亦</span><span style="color: black;">由于</span>癌症在海南医治<span style="color: black;">没</span>效去世了,享年41岁。</span><span style="color: black;"><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0IiavkficRibahMPm4PiaajNaTAqA6ERhKg2gpDHygiagXwOia0pQU1ia7uV0mzZexXMdHyWP5PYJTSVlye5gVSFg/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></span><span style="color: black;">看完心中<span style="color: black;">没</span>限唏嘘,除了<span style="color: black;">她们</span>,我还看到了对其他已故up主的缅怀视频,这些逝去的UP主曾经留下了一帧帧<span style="color: black;">新鲜</span>、<span style="color: black;">阳光</span>、顽强的影像。</span><strong style="color: blue;"><span style="color: black;">原来死亡、癌症这些词,离<span style="color: black;">青年</span>人竟然这么近。</span></strong><strong style="color: blue;"><span style="color: black;">It turns out that&nbsp; "death" and "cancer" are so close to young people.</span></strong><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0Iiavkf9uicR7PdFZvSbckYGxZibyyT9Y4RYJkgSnesMQObJYCLEp3IJXFcuCVKN1mabd9CJicaQlkx9VLOb7A/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0Iiavkf9uicR7PdFZvSbckYGxZibyyTeNDJyjBsc0yy51MIQXdltNchDSGxjq9d0vGmpZ6E8TK9OG3rMZmLtw/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我要说的,<span style="color: black;">不仅</span>是对生命的缅怀。</p>
    </span><span style="color: black;">“卡夫卡松饼君”和“虎子的后半生”的遭遇,更加深了我对“不完美<span style="color: black;">病人</span>”的认知。</span><span style="color: black;"><span style="color: black;">她们</span>是真正<span style="color: black;">病患</span>癌症的up主。</span><span style="color: black;">而<span style="color: black;">她们</span>都曾受到质疑:“癌症<span style="color: black;">病人</span>怎么可能<span style="color: black;">这般</span>生活?”</span><span style="color: black;">在<span style="color: black;">她们</span>去世后,<span style="color: black;">哪些</span>逞口舌之快的人,才<span style="color: black;">起始</span><span style="color: black;">懊悔</span>。</span><span style="color: black;">这则通告,<span style="color: black;">便是</span>B站出来护犊子,告诉<span style="color: black;">大众</span>:&nbsp;</span><strong style="color: blue;"><span style="color: black;">虽然松饼君和虎子哥<span style="color: black;">已然</span>去世了,但B站还有<span style="color: black;">海量</span>的患癌、重疾、罕见病<span style="color: black;">病人</span>。</span></strong><strong style="color: blue;"><span style="color: black;"><span style="color: black;">她们</span>还在上面分享自己与死神的抗争过程,给不幸者结伴的勇气,给健全者活着的<span style="color: black;">期盼</span>。</span></strong><span style="color: black;">B站在公告里写道:</span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">面对他人不幸的遭遇,应本着善良的原则,<span style="color: black;">由于</span>善良是维系文明的纽带。</span></strong></span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">每一个生命的结束,都应该得到基本的尊重。</span></strong></span><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0Iiavkf9uicR7PdFZvSbckYGxZibyyTicxqziaJ2ye0D0vu5VgTzvNiax1caKcCxp311mgabBkgeg4dx1rWl3jlw/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">在某些平台,对亡者账号不恰当的处理方式,曾经<span style="color: black;">导致</span>巨大的争议。&nbsp;</span><span style="color: black;">但在B站,逝去UP主的账号被列为“纪念账号”被永久的留存下来。</span><strong style="color: blue;"><span style="color: black;">“生前<span style="color: black;">咱们</span>鼓励你,死后<span style="color: black;">咱们</span><span style="color: black;">守护</span>你。”</span></strong><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0Iiavkf9uicR7PdFZvSbckYGxZibyyTqwP3vrDBf7pdzTQNugKb9iaavC6HZicbMU0mA9rfGn1g5d5AAUVuj5ww/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">那张<span style="color: black;">照片</span>里,粉色的bilibili如同「卡夫卡松饼君」和「虎子哥」变成灰色了。</span><span style="color: black;">网友忍不住发出感叹:</span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">好温柔呀!死亡不是终点,遗忘才是,这些账号被<span style="color: black;">保留</span>,就像<span style="color: black;">她们</span>会<span style="color: black;">始终</span>存在<span style="color: black;">同样</span>。</span></strong></span><img src="https://mmbiz.qpic.cn/mmbiz_jpg/iaUvG0IiavkfibLZtmIPYrHdtZWtLv9R4Zl990ico3MPW3vWmsqwg8pY4yfAYibgdF7JnMh91SNxd0M9Pafwr2dzGfg/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><strong style="color: blue;">不完美<span style="color: black;">病人</span>的“完美”生活</strong></span><span style="color: black;"><strong style="color: blue;">The "perfect" life of imperfect patients</strong></span><span style="color: black;">让人难受的是,<span style="color: black;">无</span>做过伤天害理、<span style="color: black;">无</span>杀人放火的重疾<span style="color: black;">病人</span>,只是分享了自己的遭遇和抗争,却落得个生不<span style="color: black;">安定</span>、死不清净的下场。</span><strong style="color: blue;"><span style="color: black;"><span style="color: black;">她们</span>是平凡的普通人,<span style="color: black;">亦</span>是不完美<span style="color: black;">病人</span>。</span></strong><strong style="color: blue;"><span style="color: black;">They are both ordinary people and imperfect patients.</span></strong><span style="color: black;">
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    </span><span style="color: black;">“卡夫卡松饼君”<span style="color: black;">第1</span>期视频</span><span style="color: black;">上上笑盈盈的,说话温柔从容。</span><span style="color: black;">偶尔开个俏皮的小玩笑,对着镜头眨眼,问<span style="color: black;">大众</span>“我是不是还挺</span><span style="color: black;">就像<span style="color: black;">美丽</span>爱笑的松饼君,和类似的绝症<span style="color: black;">病人</span>们<span style="color: black;">导致</span>的争议:&nbsp;</span><span style="color: black;">什么?</span><span style="color: black;">患上癌症还<span style="color: black;">能够</span>拍视频,剪视频?&nbsp;</span><span style="color: black;">去佛罗里达、纽约长途旅行?</span><span style="color: black;">还能跑100<span style="color: black;">千米</span>、健身、到处打卡吃美食、化精致的妆?</span><strong style="color: blue;"><span style="color: black;">这实在太离谱了,简直不讲病德。</span></strong>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/iaUvG0Iiavkf9uicR7PdFZvSbckYGxZibyyTIbTe6bgaibXlwWoOsS96a4OqpDwlMDcRCdz4QyNiaQQruicy6RCwBv9bQ/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">松饼君去世后的第16天,网络上仍旧不缺对癌症<span style="color: black;">病人</span>的质疑和指责。</p>
    </span><span style="color: black;">另一个叫“村里头小宝”的用户,他说自己<span style="color: black;">刚才</span>从医院回来没几天。</span><span style="color: black;">他脖子有道巨大的疤痕,那是<span style="color: black;">已然</span>被割掉的肿瘤。</span><span style="color: black;">他以晚期<span style="color: black;">病人</span>的身份告诉<span style="color: black;">大众</span>,癌症前有<span style="color: black;">哪些</span>症状。</span><span style="color: black;">有人评论:</span><strong style="color: blue;"><span style="color: black;">你告诉我这是晚期?您这身材这么有福相,气色红润,是用了什么灵丹妙药做到的?</span></strong><span style="color: black;">有人要拉黑他、有人说癌症是他的财富<span style="color: black;">暗码</span>:</span><strong style="color: blue;"><span style="color: black;">“就算是癌,<span style="color: black;">亦</span>是<span style="color: black;">初期</span>的。”</span></strong><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0IiavkficRibahMPm4PiaajNaTAqA6ERjQicTNlvmrJdcqWPrMQNapZRZLJtFN0egXGPcsB3YoqIawqPAWsEkNQ/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><strong style="color: blue;"><span style="color: black;"><span style="color: black;">由于</span>自己<span style="color: black;">无</span>经历过他人的痛苦,<span style="color: black;">由于</span>看不到世界的千变万化,<span style="color: black;">由于</span>被<span style="color: black;">各样</span>韩剧洗脑,<span style="color: black;">因此</span>难以接受癌症晚期还能<span style="color: black;">持有</span>普通人的生活。</span></strong></span><img src="https://mmbiz.qpic.cn/mmbiz_jpg/iaUvG0IiavkfibLZtmIPYrHdtZWtLv9R4ZltKocZ9bntq7cto2HZcLIgIlSBqnv3ptKO8dNJrWLRjwbSURxpVCX8g/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><strong style="color: blue;">偏见其实比绝症更残忍</strong></span><span style="color: black;"><strong style="color: blue;">Prejudice is more cruel than incurable disease</strong></span><span style="color: black;">许多人正在被“不完美”杀死。</span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">这个现象,源于<span style="color: black;">公众</span><span style="color: black;">针对</span><span style="color: black;">疾患</span>的刻板印象。</span></strong></span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">This phenomenon stems from the publics stereotype of disease.</span></strong></span><span style="color: black;"><span style="color: black;">由于</span><span style="color: black;">无</span>亲身体会过,只能全凭臆想出,病症应该有的样子。</span><span style="color: black;"><span style="color: black;">针对</span>抑郁症,人们的揣测和想象是<span style="color: black;">怎样</span>的呢?</span><span style="color: black;">抑郁病人就该是林黛玉那样,整天悲悲戚戚,都别工作社交了,买花葬花去吧。</span><span style="color: black;">妇科病就更搞笑了。</span><span style="color: black;"><span style="color: black;">倘若</span><span style="color: black;">女子</span>的妇科病不小心被人<span style="color: black;">晓得</span>了,他们本能地联想到:妇科病等于非处女、等于私生活混乱、等于浪女。</span><span style="color: black;">就像杨笠在脱口秀大会上讲过的段子,她<span style="color: black;">这般</span>口<span style="color: black;">没</span>遮拦的脱口秀演员,在做了妇科小手术之后,<span style="color: black;">亦</span>只敢遮遮掩掩地说&nbsp;:</span><span style="color: black;">“<span style="color: black;">近期</span>,我肚子里长了个小东西。”</span><img src="https://mmbiz.qpic.cn/mmbiz_png/iaUvG0IiavkficRibahMPm4PiaajNaTAqA6ERa0INJ5QuRVgnzZ0IGRg7p6FPOS8q3PoAiaqqD0cOKF55picZp1SbC08A/640?wx_fmt=png&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">至于癌症,我想可能是被影视剧里的癌症病人形象洗脑太严重。&nbsp;</span><span style="color: black;"><span style="color: black;">倘若</span>你不是光头,</span><span style="color: black;"><span style="color: black;">乃至</span>不配<span style="color: black;">作为</span>癌症。</span><span style="color: black;">想象中,癌症病人的归宿只能是医院病床上。</span><span style="color: black;"><span style="color: black;">她们</span>掉头发、嘴唇惨白、手臂扎着留置针头、胸腔插满管子、脸部罩着<span style="color: black;">呼气</span>机。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">尽管大<span style="color: black;">都数</span>绝症病人的愿望,都是像电影《遗愿<span style="color: black;">名单</span>》里那样,想到处旅行,经历冒险,在有限的余生里,去尽可能体验生命的<span style="color: black;">奥妙</span><strong style="color: blue;">。</strong></span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">但当<span style="color: black;">她们</span>真的忍着不适,活跃的出<span style="color: black;">此刻</span>镜头前、大海边、烟火气的街头小吃摊、分秒必争的职场、人流涌动的商场……</span><span style="color: black;"><span style="color: black;">病人</span><span style="color: black;">首要</span>面临的质疑<span style="color: black;">便是</span>:你真的是癌症???你<span style="color: black;">为何</span>不回去躺着?&nbsp;</span><span style="color: black;">我记得松饼君的主治<span style="color: black;">大夫</span>在视频里亲自澄清过:</span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">现代医学的<span style="color: black;">功效</span>,<span style="color: black;">便是</span><span style="color: black;">加强</span>癌症<span style="color: black;">病人</span>的<span style="color: black;">存活</span>质量,让<span style="color: black;">她们</span>能像正<span style="color: black;">一般人</span><span style="color: black;">同样</span>生活。</span></strong></span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">这<span style="color: black;">亦</span>解释了<span style="color: black;">为何</span>松饼君在肺癌晚期的时候,并不<span style="color: black;">期盼</span><span style="color: black;">大众</span>怜悯她,可怜她,而是<span style="color: black;">期盼</span>能在还活着的时候,像个正<span style="color: black;">一般人</span>一样。</span><span style="color: black;">她积极<span style="color: black;">协同</span>治疗,在镜头前展现<span style="color: black;">阳光</span>的样子,内心<span style="color: black;">亦</span><span style="color: black;">必定</span>绝望于自己时日<span style="color: black;">没</span>多。</span><span style="color: black;">当她越像个正常<span style="color: black;">女子</span>那样<span style="color: black;">爱好</span>出去旅行、吃美食、<span style="color: black;">打扮</span>,我就越心疼。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">今年8月29日《黑豹》主演,查德维克·博斯曼因结肠癌去世,终年43岁。</span><span style="color: black;">查德维克在2016年就诊断出了患三期结肠癌,在过去的四年间,他<span style="color: black;">始终</span>与病魔<span style="color: black;">格斗</span>,做手术和化疗。</span><span style="color: black;">但与此<span style="color: black;">同期</span>,他<span style="color: black;">亦</span><span style="color: black;">无</span>只躺在病床上,而是在状态不错的时候,拍下了《誓血五人组》、《玛雷尼的扭摆舞》。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">癌症博主柱子哥,<span style="color: black;">更加是</span>医院里的一道靓丽的风景线。</p>
    </span><span style="color: black;">她总是对着医院电梯的镜子自拍,再整合成穿搭合集发出。&nbsp;</span><span style="color: black;">她头发没了,戴上假发,依然是上海精致的金融<span style="color: black;">女子</span>;</span><span style="color: black;">她工作之余能整理出万字<span style="color: black;">看病</span>攻略,给病友们参考借鉴;</span><span style="color: black;"><span style="color: black;">乃至</span>上午在医院忙活完,她就能掉头去喝个下午茶。</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">病患</span>子宫颈癌的梅艳芳,在生命的最后一程连开了八场演唱会。</p>
    </span><span style="color: black;">最后一场,她是穿着婚纱<span style="color: black;">亦</span>穿着尿不湿完成的。</span><span style="color: black;">唱《夕阳之歌》之前她说了一段话:</span><span style="color: black;">“</span><span style="color: black;"><strong style="color: blue;">我想对<span style="color: black;">大众</span>说,夕阳虽然<span style="color: black;">漂亮</span>,<span style="color: black;">傍晚</span>虽然<span style="color: black;">漂亮</span>,<span style="color: black;">然则</span>眨眨眼便会变成过去,<span style="color: black;">因此</span><span style="color: black;">咱们</span>要把握分分秒秒,接下来的时间,我<span style="color: black;">期盼</span>告诉你们, 夕阳虽然<span style="color: black;">漂亮</span>,<span style="color: black;">不外</span>,只是,近<span style="color: black;">傍晚</span>。</strong></span><span style="color: black;">”</span><span style="color: black;">这段话,感动了太多人。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">我不是在淡化癌症病人的痛苦。</span><span style="color: black;">我举了这么多例子,仅仅是想说明,<span style="color: black;">病人</span>在积极的治疗、化疗、手术之后是<span style="color: black;">能够</span>像正<span style="color: black;">一般人</span><span style="color: black;">同样</span>生活的。</span><span style="color: black;"><span style="color: black;">她们</span>不是<span style="color: black;">必要</span>插满管子躺在床上,等待死神的来临,<span style="color: black;">她们</span><span style="color: black;">亦</span>有娱乐、生活、工作的权利。</span><span style="color: black;"><strong style="color: blue;"><span style="color: black;"><span style="color: black;">由于</span><span style="color: black;">她们</span>看似健康的生活状态,就以此为证据去质疑<span style="color: black;">病人</span><span style="color: black;">是不是</span>患癌。</span></strong></span><span style="color: black;"><strong style="color: blue;"><span style="color: black;">对<span style="color: black;">她们</span>是一种变相的<span style="color: black;">卑视</span>和边缘化。&nbsp;</span></strong></span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><strong style="color: blue;">请别再驱散<span style="color: black;">她们</span></strong></span><span style="color: black;"><strong style="color: blue;">Please dont disperse them again</strong></span><span style="color: black;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">癌症正在<span style="color: black;">青年</span>化,死神就徘徊在<span style="color: black;">咱们</span>的身边。</p>
    </span><span style="color: black;">在我国,<span style="color: black;">每日</span><span style="color: black;">大概</span>一万人确诊癌症,每1分钟就有5人<span style="color: black;">亡于</span>癌症。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">人类有<span style="color: black;">非常多</span>隐私,<span style="color: black;">疾患</span><span style="color: black;">亦</span>算作是一种。</span><span style="color: black;">当一个人决定把自己的隐私、挣扎、生活细节放在<span style="color: black;">公众</span>的目光下的时候,<span style="color: black;">她们</span>到底在想什么?</span><span style="color: black;">不是<span style="color: black;">每一个</span>人都像<span style="color: black;">她们</span><span style="color: black;">同样</span><span style="color: black;">阳光</span>坚强,绝大<span style="color: black;">都数</span>人在患癌后的<span style="color: black;">第1</span>反应,是自暴自弃,在<span style="color: black;">心理</span>上先崩溃掉。</span><strong style="color: blue;"><span style="color: black;"><span style="color: black;">病人</span>愿意分享自己的经历,不管是视频<span style="color: black;">亦</span>好、文字<span style="color: black;">亦</span>罢、互助会<span style="color: black;">亦</span>行,都是在寻求精神支持。</span></strong><strong style="color: blue;"><span style="color: black;"><span style="color: black;">由于</span>病人<span style="color: black;">必须</span>出口,<span style="color: black;">亦</span><span style="color: black;">必须</span>倾诉。</span></strong><span style="color: black;">你肯定会问:家人,亲戚<span style="color: black;">伴侣</span>难道不是出口吗?<span style="color: black;">为何</span>要在互联网、陌生人身上找存在感?</span><span style="color: black;">或许<span style="color: black;">非常多</span>人不<span style="color: black;">晓得</span>,真实的抗癌家庭的那种<span style="color: black;">由于</span>沉默而发出的巨大声响。</span><strong style="color: blue;"><span style="color: black;">癌症正如性和死亡<span style="color: black;">同样</span>,是大<span style="color: black;">都数</span>家庭都逃避、谈之色变的<span style="color: black;">专题</span>。</span></strong><span style="color: black;">家属避免提及,小心翼翼,<span style="color: black;">她们</span>害怕触碰,<span style="color: black;">亦</span>觉得不吉利。</span><span style="color: black;"><span style="color: black;">病人</span>大多故作坚强、强行开心、害怕爱的人崩溃。</span><span style="color: black;">正是<span style="color: black;">这般</span>的沉默,重<span style="color: black;">疾患</span>人才<span style="color: black;">逐步</span><span style="color: black;">起始</span>“互联网转型”。</span><strong style="color: blue;"><span style="color: black;"><span style="color: black;">她们</span>想在这个世界上留下痕迹,<span style="color: black;">她们</span>想<span style="color: black;">得到</span>一点外界的鼓励和支持,<span style="color: black;">她们</span>害怕<span style="color: black;">忽然</span>有一天会孤独地死去。</span></strong><span style="color: black;">只要精神不垮,<span style="color: black;">她们</span>就真的活<span style="color: black;">成为了</span>视频里那个<span style="color: black;">阳光</span>、积极、<span style="color: black;">没</span><span style="color: black;">所说</span>、热爱生活的癌症<span style="color: black;">病人</span>。</span><span style="color: black;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></span><strong style="color: blue;"><span style="color: black;">互联网像一片大海,把抑郁症、癌症、重疾、罕见病的一座座孤岛联结起来。</span></strong><span style="color: black;"><strong style="color: blue;"><span style="color: black;">B站的<span style="color: black;">包涵</span>和多元,接纳了这些重疾<span style="color: black;">病人</span>,让<span style="color: black;">她们</span>在生命的尾声里寻找到价值和快乐,请不要用语言驱逐<span style="color: black;">她们</span>、<span style="color: black;">亦</span>不要再用刻板印象<span style="color: black;">卑视</span>绑架<span style="color: black;">她们</span>了。</span></strong></span><span style="color: black;"><span style="color: black;">她们</span>把自己的<span style="color: black;">状况</span>、教训和经验发出来,其实是向暗处投射出去一缕光:&nbsp;</span><span style="color: black;">“你看,我都<span style="color: black;">这般</span>了,还在<span style="color: black;">奋斗</span>活着,你<span style="color: black;">亦</span>要加油啊!”</span><span style="color: black;">“你看,癌症虽然可怕,但它并<span style="color: black;">无</span>摧毁我的生活,我要活下去!”</span><span style="color: black;"><span style="color: black;">她们</span>鼓励了<span style="color: black;">没</span>数<span style="color: black;">一样</span>身在泥泞中的癌友,<span style="color: black;">亦</span>激励了<span style="color: black;">没</span>数对生活绝望的健全人。</span><strong style="color: blue;"><span style="color: black;">点个“在看”,告诉<span style="color: black;">更加多</span>人,请<span style="color: black;">爱惜</span>这些善良而勇敢的人哪。Please cherish these kind and brave people.</span></strong><span style="color: black;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">作者简介:桑桑姐,笔尖锋利,内心柔软,在正确与有趣之间,<span style="color: black;">选取</span>后者。个人公众号:腰线(yaoxian6)</p>
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听听海 发表于 2024-9-4 22:30:50

我完全同意你的看法,期待我们能深入探讨这个问题。

7wu1wm0 发表于 6 天前

期待楼主的下一次分享!”
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